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Illinois

Caitlin M

I ended up with C. diff after being treated for diverticulitis. I contracted Covid eight months later and had severe diarrhea. I knew instantly that it was C. diff, I am a nurse and have taken care of many patients with it. My heart sank when I saw the positive results. I was treated with Dificid initially due to being allergic to vancomycin. I had three fecal transplants at a local hospital sourced from OpenBiome but they all failed.

I then went to Indiana University to see Dr. Monica Fischer. I received another FMT and oral capsules at the same time. I still had symptoms after but negative tests. I then went to Mayo Clinic. The physician there said he wanted to do FMT again with their bank of stool because it has more cells. I have been negative for 3 months now but I do now have Crohn’s disease and I have left nursing. I cannot safely return to my profession.

I have severe PTSD. I knew the entire time every single outcome I could have. I am a mother of three young children and I still live in fear daily. I am here to say you have to fight for care. FMT is life saving. Doctors are trying to get OpenBiome to be able to give stool to all hospitals again. I am currently helping too. Mayo Clinic can and will do FMT. Boston will. IU will. You have to keep asking and fighting! I will spend the rest of my life fighting for others to get the care I received. I will fight until it’s the standard for everyone. I hope someday I can live without this paralyzing terror.

Age

Gender

Female

Length

9 months

Source

Hospital Acquired

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