By: Christian John Lillis
If you or a loved one has been harmed by a clostridium difficile infection (CDI), you’ve probably wondered what could have been done to prevent it. If you’ve struggled with recurrent or treatment-resistant CDI, you’ve probably asked yourself why there aren’t more and better treatments. Or, why it’s so hard to get a fecal transplant. Worst of all, if you’ve lost a loved one to this terrible infection, you’re no doubt angry and frustrated that a largely preventable disease kills over 29,000 Americans every year.
Peggy Lillis Foundation was founded in response to the anger and frustration we felt in response to our mother’s death from a CDI.
At the core of our mission is empowering other individuals and families to take action to raise CDI awareness and advocate for changes that will spare other families the pain we’ve faced. PLF believes that patient and citizen advocacy is the key to reversing the tide of harm caused by CDIs
That’s why we want you to join PLF’s Advocates Council. Composed of volunteers who’ve either had a CDI or been a caregiver, the Council is the nucleus of PLF’s advocacy efforts and awareness raising efforts.
Supported by PLF, Advocates engage in a wide range of activities to educate the public, support and empower CDI sufferers and caregivers, lobby for CDI-related laws and regulations at the state and federal level, and help build a powerful and sustainable movement.
Next month, we will be hosting the first-ever C. diff Advocates Summit in New York to provide training, knowledge and networking to members. Space is limited so please fill out our Advocates Council application today if you want to participate.
If you have any questions, please contact us or send an email to Katie Curl.
We hope you’ll join volunteers from across the country in working toward a world where C. diff is rare, treatable and survivable.