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pennsylvania

Melanie


As a nurse, I had heard of C. diff and treated many patients with it. I never imagined I’d soon become a patient myself. In January of 2023, I was prescribed antibiotics for what I thought was a dental infection. Shortly after, I developed chronic, painful diarrhea. I could barely eat. About a month later, I ended up being admitted into the hospital for 3 days with nausea and the worst pain in my entire life. Finally, they gave me my answer: C. diff. I was started on 10 days of vancomycin. I immediately felt better. However, just 2 weeks after stopping the vancomycin, my symptoms returned with a vengeance. I was then prescribed Dificid, which was a miracle drug for me. I responded well again but 3 weeks later, relapsed again. This time, I had blood in my stool, sweating, nausea, and more pain. I was then placed on a 50 days taper of Dificid to try and kick my infection. I was able to eat more during this time period. I almost felt like myself again. But about 3 and a half weeks off the taper, my symptoms returned yet again. My mental health also struggled feeling like I’d never be able to beat thing thing. I had lost 50 lbs during my battle with c. Diff. Finally, after months of pain and trouble finding the right doctor and treatment, I finally found incredible GI and ID doctors. They recommended I try VOWST, a new FDA approved fecal transplant. I knew I must be pretty desperate to get my life back if this was the option I was considering. I took time off of work and in September of 2023, I took Vowst. I am now 9 weeks post treartment and doing great! I still can’t tolerate all foods the way I used to but I feel more like me again. And best of all, my symptoms haven’t returned. I never knew how horrific c diff could be until I was diagnosed with it. It has been the worst year of my life and yet I’m so incredibly grateful for modern medicine for giving me my life back. I even got to travel to Puerto Rico this year to celebrate being C. diff free!

Age


Gender


Female

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Other

Other Stories


Length: 2 Months

JULIA W.

In February 2020 I was prescribed both clindamycin and cefalexin for a breast abscess. Three weeks after I finished my course of antibiotics, in March 2020, I started to have severe, painful abdominal cramping and diarrhea. Each day became worse and worse until I was up through the night and couldn’t be away from the toilet for more than half an hour.

Length: 6 Months

Ken

It started with a rash on my back that I suspect started from the barber I was seeing.  Scratching it made it worse. I went to the doctor’s office and was tended to by a PA. It was decided that this infection should be treated with a broad-spectrum antibiotic.

Length: 2 Months

JULIA W.

In February 2020 I was prescribed both clindamycin and cefalexin for a breast abscess. Three weeks after I finished my course of antibiotics, in March 2020, I started to have severe, painful abdominal cramping and diarrhea. Each day became worse and worse until I was up through the night and couldn’t be away from the toilet for more than half an hour.

  • Length: 4 months

    Sue G.

    I was pulling vines and weeding in my yard when I felt something on my forehead. An hour later I noticed four small bumps on my eyelid. My forehead was sensitive and swollen. I drove to Urgent Care nearby and a very young nurse practitioner prescr…
  • Melanie

    As a nurse, I had heard of C. diff and treated many patients with it. I never imagined I’d soon become a patient myself. In January of 2023, I was prescribed antibiotics for what I thought was a dental infection. Shortly after, I developed chronic…
  • Length: 2 months

    Kristi M.

    I had a severely infected tooth, but my dentist misdiagnosed my tooth abscess for a more serious facial infection and referred me to the local emergency room. I was given IV Clindamycin, and was sent home with a 10 day prescription for Clindamycin…
  • Suzanne Dee Gorman

    The first time I had C-diff I had spent two months in the hospital waiting to give birth to my daughter during which I had triplets to which I lost two. I gave birth to a beautiful baby girl via cesarean section.  A week later, I was still in the …
  • Marlon

    I had C Diff about April 2023, I didn’t know then what it was. It started with a lot of gas, then it continued with diarrhea once a day, then it went to ten times a day. It got so bad that I couldn’t hold any stool as soon as I at I had to use the…
  • Joan Hardin

    There are several strains of C. diff, ranging from the extremely virulent type that killed Peggy Lillis so quickly after she took antibiotics for a dental problem to a milder form that I battled for many months. An overrun of the bug causes diarrh…
  • Length: 6 MONTHS

    Andi L.

    Submitted by her mother, Jennifer Lucas UPDATE: We recently heard from Andi’s mother, Jennifer, who told us that Andi’s most recent treatment was successful and she has been C. diff free from several weeks. Andi, my four-year-old has C-diff …
  • Length: 6 MONTHS

    Chris & Victoria

    In June of 2008, after a grueling first six months of child-rearing, Victoria O’Neal became ill with stomach pains and mild diarrhea. She was prescribed a wide-spectrum antibiotic, which seemed to only make the symptoms worse. After a period of co…
  • Maryann Dillon

    My name is MaryAnn Dillon. I am a Registered Nurse in the Emergency Room at North Shore-Long Island Jewish Health System, where I have worked for about 25 years. I have worked with Helen Biegel, Peggy Lillis’ sister for four years and we have talk…
  • Length: 1 YEAR

    Megan F.

    My name is Megan and I live in Pennsylvania. I am 29, married and have three small children. I have struggled with Clostridium difficile (C. diff) for the past year before receiving a fecal transplant, which has successfully treated the condition …